By Ruth Bartlett
Dementia has been extensively explored from the views of biomedicine and social psychology. This ebook broadens the talk to contemplate the stories of fellows and ladies with dementia from a socio-political viewpoint. It brings to the fore the idea that of social citizenship, exploring what it ability in the context of dementia and utilizing it to reassess the difficulty of rights, status(es), and participation. most significantly, the e-book deals clean and useful insights into how a citizenship framework should be utilized in perform. it is going to be of prepared curiosity to future health and social care execs, coverage makers, lecturers, and researchers, and other people with dementia and family members carers will locate it revitalizing.
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Additional info for Broadening the Dementia Debate: Towards Social Citizenship (Ageing and the Lifecourse Series)
To be a person, it is assumed that you must be capable of rational thinking and memory. Because dementia is associated with a progressive decline in these cognitive functions, the disease has historically been assumed to strip the individual of their personhood status, leading to a ‘loss of self ’ (Cohen and Eisdorfer, 1986; Herskovits, 1995). Beginning in the late 1980s, the notion of ‘personhood’ was reconceptualised and introduced into the dementia literature as a critical component of the dementia experience.
Specifically, a core theme that dominates the person-centred literature highlights the importance of ‘knowing’ the person with dementia, including drawing on his/her biography and life experiences, to promote approaches that will maintain his/her personhood. This has been an important step forward. However, we have now reached somewhat of an impasse: how do we use this biographical material without allowing it to restrict opportunities for change? This issue can be especially well illustrated when we look at discussions around advanced care planning and directives where people with early dementia are increasingly encouraged to take control of their own care by planning for the future.
Moreover, reinforcing a sense of passivity, personhood is conceptualised as something that is conferred on a person with dementia, conveying a unidirectional understanding that continues to position a person with dementia as dependent on others for affirmation. For example, Downs (1997, p 598) notes that maintaining the personhood of people with dementia essentially becomes ‘the responsibility of those who are cognitively intact’ rather than the individual with dementia. Thus, a personhood lens does not explicitly recognise the status of a person with dementia as either intrinsic or self-enabled.