By Robert L. Kane M.D., Joan C. West
The failure of long term care is the country’s best-kept embarrassing mystery. nearly each grownup within the usa will both input a nursing domestic or need to take care of a father or mother or different relative who does. experiences exhibit that forty percentage of all adults who stay to age sixty-five will input a nursing domestic ahead of they die, whereas much more will use one other kind of long term care.Part memoir, half sensible consultant, half prescription for switch, It Shouldn’t Be this manner is a different examine the issues of long term care. Robert L. Kane, a hugely skilled health professional and gerontologist, and his sister, Joan C. West, inform the painful tale of what occurred to their mom after she suffered a debilitating stroke and spent the final years of her lifestyles in rehabilitation, assisted-living amenities, and at last a nursing domestic. alongside the way in which, her grownup childrens encountered a few pros who have been sort and thoughtful but additionally many frustrations—inadequate care and the necessity to lease deepest responsibility aides, in addition to terrible verbal exchange and shortage of coordination during the process. the placement, they discovered, proved way more tricky than it had to be.As the authors recount their mother’s tale, they convey numerous classes they discovered from every one part of the event. They alert those people who are confronting such occasions for the 1st time approximately what they'll most probably face and the way to process the issues. final with a broader examine why long term care is how it is, they suggest steps to make beneficial reforms, together with the advance of nationwide agencies to paintings for swap. Their message to households, care pros, and policy-makers couldn't be extra pressing.
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Extra resources for It Shouldn't Be This Way: The Failure of Long-Term Care
Joan visited all of these to R E H A B I L I TAT I O N 51 see ﬁrsthand what they looked like. But how do you really tell what a place is like? Most assisted-living facilities have a sales oﬃce. Although the sales people were friendly, we knew enough to approach them with the same caution one employs in a used-car lot. They have a product to sell. No assurances are too great, no claims too exaggerated. Because family, not the resident, is often the real customer, many assisted-living facilities invest heavily in the look and feel of the common areas.
Like almost every other older patient, she expressed a strong desire to return home. And like most families of the aﬄicted, we viewed that preference as illogical. Once we decided that she needed to go to Long Island to be near Joan, however, she seemed to acquiesce. Ruth did indeed have occasional periods of lucidity. At one point in the Florida hospital stay she recalled that several weeks earlier, before her stroke, she and Robert had gone shopping to purchase a new outﬁt for her to wear to his daughter’s wedding, which was just a few weeks oﬀ.
Again Robert’s institutional connections made our process easier; he called his geriatric colleagues in New York to inquire about good units. They recommended one near Joan on Long Island. He called the medical director and explained the medical situation. They had no openings but expected a discharge in a few days that would create a slot. Most people facing this dilemma will not have professional contacts. They will have to rely on the discharge planners. These hospital resources can provide lists of places but they may vary widely in the extent of their actual knowledge about the potential locations.